We are our own support. This is where you can read about how we won our battles. Someone filed an appeal for a medical cost. Here's what they did and the result.
Gaucher and other Rare Diseases Live Stream
Hello fellow Gaucher "enthusists"
I have been given a great opportunity to Live Stream through ZubiaLive with a focus on Gaucher and other rare diseases. This once-a-week 15 minute segment called "Rare 15" has already been positively received by the healthcare community. I encourage you to give it a try and chat with me during the live broadcast. Sign up by downloading the ZubiaLive app or by visiting zubialive.net. I'll also continue the conversation on twitter with #rare15chat
Thanks for your support!
Gaucher Patient (Type 1).